Autism and sensory processing disorder – how can parents manage both

Parenting is one of life’s toughest jobs but it can be even more challenging if your little superstars are finding the world a bewildering place.

You’re raising and loving a child with autism but do they have Sensory Processing Disorder (SPD) too? Let’s explore what SPD is, how to understand your child’s challenges and, most importantly, how you can support their growth and happiness.

This blog covers:

  • What is SPD and how does it relate to autism?
  • How sensory processing disorder presents itself when referring to the five outward senses and the three inward senses.
  • Top tips for helping your child to thrive.
  • Building emotional resilience.
  • Resources and support

What is SPD and how does it relate to autism?

Autism Spectrum Disorder (ASD), is a developmental condition that affects how a person communicates and interacts with others. Not all children with autism experience SPD, but there’s a strong link between the two.

If a child is diagnosed with autism, it’s highly likely that they have trouble processing their senses. According to NHS England, “Lifelong and persistent sensory sensitivities are a diagnostic characteristic of autism. Recent studies suggest prevalence in between 69% to 90% of autistic people”.

So how can you tell if it’s SPD and not a symptom of autism?

SPD affects how the brain processes sensory information, like touch, sound, or taste. The difference between children with autism sensory disorders and those with SPD is their experiences are so extreme and debilitating.

How sensory processing disorder presents itself

When a child struggles to make sense of the sights, smells, and sounds around them, it can feel like they’re under attack. The stimuli feels so overwhelming that it leaves them powerless to do day-to-day activities.

Here’s how a child with a sensory processing disorder experiences the world through their senses:

Vision

With autism, children process the whole of an image. That’s why you might find they hold their hands up to their face when looking at something, so they can make sense of it. But a child with SPD might really struggle with too much visual stimulation or not enough.

If they struggle with too much visual stimulation, they might react badly to bright light and overreact about going outside on a sunny day. They might prefer to sit in the dark. And they might frequently rub or squint their eyes.

If they need a lot of visual stimulation, they might like watching spinning or shiny toys. They might enjoy flicking light switches on and off. Or, they might bump into people and objects because they’re too distracted looking at other things.

Sound

Children with autism can have an aversion to sound. That’s why you’ll see them wearing ear defenders or ear pods that help to take the edge off the noisy world around them. But there’s an extreme version of this – hyperacusis.

People and children that have hyperacusis find many noises unbearable and sometimes painful.

Taste

Children with SPD often enjoy food…but in their own way. Some will only eat beige diets; some can’t stand different food types touching each other and some seek out really strong flavours. If they’re presented with food that doesn’t reflect their needs, they may react in an extreme way.

Touch

SPD sufferers can often feel touch as painful – even a brush past can send their senses into meltdown.

Smell

Smell has a powerful way of helping us recall a memory. But for children with SPD, they might link a smell to a bad experience. They might gag if they find smells particularly unpleasant.

That’s the outward senses covered. But there are three more that don’t get mentioned as much. For those experiencing autism and SPD, the lesser-known inward senses can also affect them.

Interoception

Interoception is our brain’s perception of how our body is doing. It’s basically the signals that get sent from our internal organs to our brains.

According to The Guardian, “Scientists have shown that our sensitivity to interoceptive signals can determine our capacity to regulate our emotions, and our subsequent susceptibility to mental health problems such as anxiety and depression.”

But how does a child with autism and SPD experience interoception? You might find that they struggle to stop eating because they don’t realise how full they are – the signal from their tummy isn’t getting through to their brain. Or, they might regularly wet themselves because they don’t recognise their bladder is full.

Proprioception

Proprioception is all about body awareness and it tells us our body’s position in space. It helps us to process where our joints are positioned and how much muscle force we need to use.

For children with autism or SPD, they might play too rough. They might use so much force when colouring that they often break their crayons. They might frequently kick their feet when sitting or stomp really hard when walking. They like being wrapped tightly in blankets or squished in a bear hug.

Vestibular

This sense is related to balance. It’s controlled by the vestibular system which sits in the ear. It sends information to our brain when our head moves which lets us know where we are in space and how fast or slow, we’re going.

But how can this sense be affected if your child is suffering from autism or SPD? They might feel a strong need to rock or spin. This helps them to regulate their nervous system. They might pursue movement to the point that it interferes with their lives.

All of the points above can also relate to autism but the difference is that sensory processing disorder will cause a child to have extreme reactions to the world around them, regularly.

Recognising these signs can help you differentiate between the effects of autism and SPD, leading to more targeted and effective treatment and support.

Our top tips for helping your child to thrive

When managing autism and SPD, the key is to create an environment that supports your child’s sensory needs. Our experience tells us that children can benefit from the following:

Vision

  • Adjustable lighting: Fluorescent lights can be harsh for some children with SPD. Try using soft, natural lighting or dimmable lamps to create a more calming atmosphere.
  • Visual schedules: Many children with autism benefit from visual aids that help them understand what’s coming next. A visual schedule can reduce their anxiety by showing them what to expect in their day
  • Eyewear: Some children benefit from wearing lenses that help them to transition to different lighting conditions. The lenses will darken when a child enters a brighter environment. Or even having a pair of sunglasses close by can do the trick.

Sound

  • Noise reduction: Ear defenders, ear pods – there are so many options to choose from when it comes to turning the volume down on your child’s world. Noise cancelling headphones can be a game changer, especially when it comes to helping them deal with noisy environments like supermarkets or family gatherings.
  • Quiet zones: Designate a quiet space in your home where your child can retreat if they feel overwhelmed. This can be a small corner with soft furnishings or a cozy tent with their favourite blankets.

Touch

  • Clothing choices: Choose seamless, tag-free clothing made from soft fabrics to avoid any discomfort they might get from rough or tight-fitting clothes.
  • Sensory-friendly activities: Finger painting, playdough, or using a weighted blanket can help provide soothing, calming pressure for children who seek tactile stimulation.

You could also:

  • Go on more trips to the park. Perfect for those children that want more body awareness stimuli.
  • Get a gym ball or peanut ball. They help children to feel where their body is in space.

Dr. Wendy Sparling, Aspris Regional Director says, “Remember, your child is unique. It might take time and some experimenting to find what works best, but each small win is a step towards creating a more supportive environment for your child. She goes on to say, “don’t be afraid to let your child grow. For example, you might be worried about how they’ll be perceived if they wear their ear defenders in a public place. But helping them to cope now will help them to make sense of the world around them. Many children are able to manage their issues as they get older because coping mechanisms were put in place right from the start.”

Building emotional resilience

Supporting a child with both autism and SPD can be emotionally demanding, and it’s essential to take care of your own wellbeing too. Remember, you don’t have to do it alone.

Asking for help isn’t a sign of weakness. It’s a sign of strength because it shows you’re willing to do whatever it takes for your child’s happiness. Find your child a space in your home where they feel safe, then take time for self-care. You might go on a short walk, have a cup of tea, or a few moments of quiet. Reflect on what you are doing for your child and not on what you aren’t doing.

Resources and Support

Here are some helpful resources where you can find support and connect with others:

Community: Connect with other parents, joining sensory playgroups, or seeking professional guidance can make a big difference. Local authorities have an IAS (Information, Advice and Support) service and they can give you information about the resources in your area.

Online: Websites like Mumsnet and the National Autistic Society have active forums where parents share tips and experiences. Social media also has its benefits and you can often find the latest news by following groups or parents of neuro-diverse children. Just use your judgement.

Apps: Try using apps like Sensory Treat, which offers tailored sensory activities and tracking tools.

Specialists: Consult with occupational therapists or sensory processing specialists who can provide personalised strategies and support. At Aspris, we are experts in specialist education and residential care. We support children and young adults with a range of needs and help them to flourish at school and socially.

Financial support: From education to making a sensory space in your home, having a child with autism and SPD can be draining financially. However, there are grants and charities that can support you and your child’s journey. Check out Family Fund for income criteria-based support.

Get smart: Check out places like Rompa and Spacekraft for sensory ideas for your home. Then head to Amazon and see if you can recreate your space on a budget.

Wrapping it up – you’re amazing!

Parenting a child with autism and SPD takes bravery and courage. The journey is filled with ups and downs, but every day you show up, learn, and adapt is a day you’ve done an incredible job. You might not always see it, but the love, care, and effort you put into supporting your child makes all the difference. Remember, you’re not just managing these challenges; you’re helping your child discover the world in their own unique way, and that’s something to be proud of. Keep going, because you’re doing amazing work.

To find out more about Aspris and how we support the education of children with autism and sensory processing disorder, please contact us.